Creative Methodological Disruptions for Disability Studies

This book offers a unique approach to disabled children's views, articulating methodological reflections and experiences from a study conducted with children with diagnoses of autism and their parents. The reader is invited to engage with the ways children reclaim their social agency and multiple ways of knowing, being and becoming, through creative encounters where mattering and autonomy are protected.

Weaving together arts scholarship, art activism, multimodality, critical poetic narrative, and Gramsci's organic intellectualism, the book maps the oppressive systems that dehumanise and stifle disabled children's identities, reshape parenthood and obscure capabilities.

The author addresses the value of creative autonomy, affect and reflexivity in ethical research, disrupting the directive practices that pervade disabled lives. This is an urgent call to question the different ways children's freedom of expression is easily sacrificed, enmeshed in rhetoric, bureaucracy and habit.

The dialogue between the narrative and the artworks opens up diverse channels for recognition, to learn from children, to be present, resist direction, and restore our shared humanness.

Brings a novel approach to disability studies and childhood scholarship Offers practical tools addressing the need for autonomy in ethical research with disabled children Develops an original take on Gramscian thought for disability research, with an arts-informed and post-human ethos

Autorentext

Francesca Bernardi is an independent scholar, artist and speaker. Her socially-engaged work with individuals navigating dis/ability, cultural and social exclusions, is non-hierarchical decolonial and multimodal, rooted in arts-informed methodologies, critical dis/ability studies and social pedagogy. She is the founding chair of the Antonio Gramsci Society UK, an international forum for accessible civic engagement, Fellow of the Royal Anthropological Institute, editorial board member of Disability & Society, member of CATA-ACAT, and the Marxist Education Project.

Inhalt

Chapter 01: Disrupting Habits Disrupting Justice.- Chapter 02: Crafting an Experiential and Relational Methodology.- Chapter 03: Recruitment, Representation and the Social Purpose of Research Destabilising Methodological Habits.- Chapter 04: Theoretical Perspectives, Intra-action and Analysis.- Chapter 05: Creative Encounters.- Chapter 06: Children's Perceptions and Experiences of Social Structures and Distinctions.- Chapter 07: Threads of Experience: Love and Resistance in the Interviews with Mothers and Fathers.- Chapter 08: The Role and Potential of Radical Relational Research.