Disfigurement

Disfigurement: Understanding Visible Difference is a collection of essays which brings together an all-star cast of researchers, clinicians, advocates and activists around the world, many of whom have lived experience with disfigurement.

Autorentext

Lise Deguire, Phd, is a clinical psychologist, author, and burn survivor. After being severely burned as a four-year-old, she spent much of her childhood in the hospital, undergoing countless surgical procedures. Dr. Deguire is the author of the multiple award-winning book, Flashback Girl: Lessons on Resilience from a Burn Survivor. Dr. Deguire attended Tufts University, graduating summa cum laude, Phi Beta Kappa. She earned her doctorate in clinical psychology from Widener University and is in solo practice in New Jersey. Dr. Deguire has appeared on NPR, NBC, ABC, FOX, and Sirius XM. She is a TEDx speaker, a national keynote speaker and has presented for The American Psychological Association, the World Burn Congress, The Security and Exchange Commission, and The American Burn Association. She writes for Psychology Today, and has been featured in Huffington Post, Thrive Global and Tiny Buddha. Dr. Deguire blogs regularly about psychological resilience.

Miriam Jaffe, PhD (English), LSW, is Associate Teaching Professor in the Writing Program at Rutgers University and the lead editor of five collections on social justice issues (Routledge, 2016-2022). Her publications on narrative activism - from narrative medicine in literature to mental health and racial justice awareness in the social sciences - span 15 years. She's worked as associate editor for the journal Writing and Pedagogy. She recently won Rutgers University's Beloved Community award. Miriam is also a psychotherapist specializing in trauma using EMDR and play.

Klappentext

Disfigurement: Understanding Visible Difference is a collection of essays which brings together an all-star cast of researchers, clinicians, advocates and activists around the world, many of whom have lived experience with disfigurement.

Inhalt

Contents

Dedication and Acknowledgements

Contributor Bios

Introduction in Two Parts

Lise Deguire and Miriam Jaffe

Section 1: The Psychosocial Aspects of Body Image and Identity

Chapter 1

Confronting Embodied Ableism: Learning from Synkinesis

Faye Linda Wachs

Chapter 2

Acid Violence and Disfigurement: Lived Experiences of Women Survivors

Beenish Ambereen and Farhan Navid Yousaf

Chapter 3

**"Those experiences while good also made me feel uncomfortable and broken": A Male's Perspective of Living with Facial Eye Disfigurement**

Zali O'Dea and Jane Southcott

Interlude

Living Louder: Uncovering and Unlearning the Lessons of Rejection Stories

Jasmine "Jaz" Gray

Pretty Disability: A Collection of Essays from a Black Girl who has Contemplated her Beauty and Worth

Rasheera D. Dopson

Section 2: Interventions

Chapter 4

Psychosocial Interventions to Support People Affected by Visible Differences

Diana Harcourt, Maia Thornton, Pippa Tollow, Fabio Zucchelli and Alex Clarke

Chapter 5

Visible Difference and Social Media: Harnessing a Unique Tool to Increase Support and Reduce Stigma

Ella Guest, Abbi Mathews, and Amy Slater

Chapter 6

FaceIT@home: An Online Support Tool for Adults with Visible Differences

Alyson Norman

Interlude

Finding My Voice

Dina Zuckerberg

The Swan Fallacy

Sora Kasuga

Section 3: Representations of Disfigurement

Chapter 7

Challenging Down Syndrome Prejudices in Today's Media Landscape

Charlene Pell

Chapter 8

Facing up to IT is worth it; James Partridge Revisited

J. Michael Murphy

Chapter 9

The Stories that Need to be Told

Phyllida Swift